The Life of Breath team, like our colleagues at Breathe Oxford, recently responded to the proposal that defining chronic breathlessness as a syndrome might raise awareness of its impact on people’s lives. We stress that more consultation with ‘experts-by-experience’ (patients who experience breathlessness and their families) is necessary. In addition, given our findings about the importance of language, culture and context on the experience of breathlessness, more medicalised terminology may not be helpful.
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